Witnessing the end, supporting the living: A qualitative study of palliative caregiving in end-of-life patients in Türkiye

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dc.authorid0000-0003-2078-7691
dc.authorid0000-0001-9140-7567
dc.authorid0000-0003-1250-599X
dc.contributor.authorSert Yurdakul, Selinen_US
dc.contributor.authorErbay Erşen, Merveen_US
dc.contributor.authorÖzel, Dilaraen_US
dc.date.accessioned2026-03-02T11:15:13Z
dc.date.available2026-03-02T11:15:13Z
dc.date.issued2026-02-11
dc.departmentIşık Üniversitesi, Lisansüstü Eğitim Enstitüsü, Klinik Psikoloji Doktora Programıen_US
dc.departmentIşık University, School of Graduate Studies, PhD (Doctorate) Program in Clinical Psychologyen_US
dc.description.abstractObjectives. Palliative care seeks to enhance the quality of life for individuals with serious illnesses and their families by addressing physical, emotional, and psychological needs. This phenomenological study examines the lived experiences of 8 caregivers in palliative care settings in Türkiye, focusing on the challenges they face, the coping mechanisms they employ, and their reflections on the caregiving role. Special emphasis is given to both psychological and somatic signs of stress, along with the possible advantages of body-oriented resilience techniques. Methods. Using a phenomenological qualitative design, semi-structured interviews were conducted with 8 caregivers providing care to relatives in a hospital-based palliative care unit. Data were collected between February and April 2023 and analyzed through conventional content analysis. Results. Four central themes emerged from inductive coding: harmony in healing, navigating difficulties, resilience in palliative care, and reflections on the finite. The findings reveal a dual reality: palliative caregivers derive meaning and satisfaction from compassionate connections, high-quality clinical care, and peer support, yet they also endure significant burdens, including emotional strain, physical exhaustion, disrupted daily routines, and shifting relational dynamics. Anticipatory grief and chronic stress responses were prevalent, frequently manifesting in both psychological and somatic forms (e.g., sleep disturbances, muscle tension, and autonomic arousal). Despite these challenges, palliative caregivers employed spiritual beliefs, peer interactions, and self-care routines as resilience strategies. Significance of results. The mind–body challenges identified in the study emphasize the need for interventions that focus on self-regulation and resilience, including body-oriented approaches that strengthen internal resources, regulate stress responses, and encourage adaptability. Incorporating such approaches into group-based settings may improve mutual support and enhance both individual and relational well-being. The study highlights the importance of comprehensive, caregiver-centered support systems to reduce burden and improve the overall quality of palliative care.en_US
dc.description.versionPublisher's Versionen_US
dc.identifier.citationSert Yurdakul, S., Erbay Erşen, M. & Özel, D. (2026). Witnessing the end, supporting the living: A qualitative study of palliative caregiving in end-of-life patients in Türkiye. Palliative and Supportive Care, 24, 1-8. doi:https://doi.org/10.1017/S147895152610162Xen_US
dc.identifier.doi10.1017/S147895152610162X
dc.identifier.endpage8
dc.identifier.issn1478-9515
dc.identifier.issn1478-9523
dc.identifier.pmid41669814
dc.identifier.scopus2-s2.0-105029888407
dc.identifier.scopusqualityQ2
dc.identifier.startpage1
dc.identifier.urihttps://hdl.handle.net/11729/7083
dc.identifier.urihttps://doi.org/10.1017/S147895152610162X
dc.identifier.volume24
dc.identifier.wosWOS:001686050300001
dc.identifier.wosqualityQ3
dc.indekslendigikaynakPubMeden_US
dc.indekslendigikaynakScopusen_US
dc.indekslendigikaynakWeb of Scienceen_US
dc.indekslendigikaynakSocial Sciences Citation Index (SSCI)en_US
dc.institutionauthorErbay Erşen, Merveen_US
dc.institutionauthorid0000-0001-9140-7567
dc.language.isoenen_US
dc.peerreviewedYesen_US
dc.publicationstatusPublisheden_US
dc.publisherCambridge University Pressen_US
dc.relation.ispartofPalliative and Supportive Careen_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Öğrencien_US
dc.rightsinfo:eu-repo/semantics/openAccessen_US
dc.subjectAnticipatory griefen_US
dc.subjectBody-oriented interventionsen_US
dc.subjectCaregiver resilienceen_US
dc.subjectPalliative careen_US
dc.subjectPalliative caregiversen_US
dc.subjectAdaptationen_US
dc.subjectPsychologicalen_US
dc.subjectCaregiversen_US
dc.subjectHumansen_US
dc.subjectInterviews as topicen_US
dc.subjectMiddle ageden_US
dc.subjectQualitative researchen_US
dc.subjectQuality of lifeen_US
dc.subjectStressen_US
dc.subjectTerminal careen_US
dc.subjectInterviewen_US
dc.subjectMental stressen_US
dc.subjectPalliative therapyen_US
dc.subjectProceduresen_US
dc.subjectPsychological adjustmenten_US
dc.subjectPsychologyen_US
dc.subjectFamily caregiversen_US
dc.subjectCancer-patientsen_US
dc.subjectCare interventionen_US
dc.subjectBurdenen_US
dc.subjectPerspectivesen_US
dc.subjectBereavementen_US
dc.subjectHospiceen_US
dc.subjectImpacten_US
dc.titleWitnessing the end, supporting the living: A qualitative study of palliative caregiving in end-of-life patients in Türkiyeen_US
dc.typeArticleen_US
dspace.entity.typePublicationen_US

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